Category: noticias
20 Marzo 2018 RESUMEN SEMANAL DE NOTICIAS

20 Marzo 2018 RESUMEN SEMANAL DE NOTICIAS

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Genome Sequencing and Its Clinical Potential Focus of NYC Rare Disease Day Event ‘A Disease May Be Rare, Hope Should Never Be,’ Says Boy with SMARD at Connecticut Rare Disease ...

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13 Marzo 2018 RESUMEN SEMANAL DE NOTICIAS

13 Marzo 2018 RESUMEN SEMANAL DE NOTICIAS

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Rare Disease Groups Welcome FDA’s Embrace of ‘Real World’ Data in Clinical Trials US Lawmakers Urge Bipartisan Support for Rare Disease Research, Patients’ Needs IONIS-HTTRx ...

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06 Marzo 2018 RESUMEN SEMANAL DE NOTICIAS

06 Marzo 2018 RESUMEN SEMANAL DE NOTICIAS

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Blocking Certain Glutamate Receptors Seen to Ease Huntington’s Advance in Mouse Model of Disease Retrophin, Horizon Donate $3M Each to Rare Disease Institute at Children’s ...

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